Amy, the way you tell the story of how dementia started in your mom is so gripping. Not only did I get a clear picture of how Freda felt at the time, but also the subtle emotions stirring up inside you as you witnessed the disturbing changes. Having known you and Freda for many years and visited you recently, my heart still breaks to read the details as you recount them here. Last night I had a dream, in which I was with you and your family. I saw Freda crossing the street in spritely steps, and as soon as she came to my side, I gave her a hug and a kiss. It was a lovely dream.
Louisa, I am so glad what I tried to convey came across to you the way I intended it. It is vulnerable and raw to write about my mother and her descent into this illness and I want to do it honestly and lovingly. Your visit to us was so meaningful to both of us. And I just loved hearing about your dream. That made me happy.
I really enjoyed reading how your journey with Frieda’s dementia began. It is something I fear for myself, as I feel so forgetful all the time. My grandfather suffered from Alzheimer’s disease and an aunt has been recently diagnosed with the beginning stages. It’s a difficult journey for your whole family, but especially you as the primary caregiver.
I think we all fear it, Julie, the idea that those "senior moments" we all experience become something much worse. I can see you understand from your own family's experience with dementia. Thanks so much as always for your support and understanding, my friend.
This is so heartbreaking to read, Amy. This is a phase of life we all must live through. But losing a person we love when they are still there with us is terrible. But you are strong - you will get through it - and do your very best for your dear mom. Lots of love to you, kiddo.
I’m so moved by this piece, Amy. And your mom sounds an awful lot like mine (uber progressive with no filter when it comes to politics ❤️). The love and compassion you have for your mom shines here. I am my mom’s only daughter and as I watch her age (she’s 76); witnessing her cognitive functioning and mobility teeter, my heart aches. The service you are providing by creating a community for folks who are caring for aging parents to come together and share resources, encouragement and understanding is beautiful. It’s one of the many ways I’m sure you make your mom so proud, still. 💕
Allison, thank you so much for this lovely comment. Yes, our mothers would have had a lot to talk about when it comes to politics. It is a heartbreaking process, to see our mothers/parents age. Thank you for seeing so beautifully the intention behind how I share this tender and vulnerable stage of my mother's life, and our relationship. She would be proud. Thank you for reminding me of that.
beautiful, touching, needed. thank you, Amy.
Thank you so much Elena. It is my wish that those who need to read this will find their way here. It was healing for my heart to simply write it.
I can feel that. It's what I love most about Substack - the writing heals.
Lovely and sensitive portrayal of the early part of your and your Mom's journey.
Thank you April! Glad you’re here💗
Has your family been affected by dementia or Alzheimer’s? What do you most need for support? How can we help each other?
Amy, the way you tell the story of how dementia started in your mom is so gripping. Not only did I get a clear picture of how Freda felt at the time, but also the subtle emotions stirring up inside you as you witnessed the disturbing changes. Having known you and Freda for many years and visited you recently, my heart still breaks to read the details as you recount them here. Last night I had a dream, in which I was with you and your family. I saw Freda crossing the street in spritely steps, and as soon as she came to my side, I gave her a hug and a kiss. It was a lovely dream.
Louisa, I am so glad what I tried to convey came across to you the way I intended it. It is vulnerable and raw to write about my mother and her descent into this illness and I want to do it honestly and lovingly. Your visit to us was so meaningful to both of us. And I just loved hearing about your dream. That made me happy.
I really enjoyed reading how your journey with Frieda’s dementia began. It is something I fear for myself, as I feel so forgetful all the time. My grandfather suffered from Alzheimer’s disease and an aunt has been recently diagnosed with the beginning stages. It’s a difficult journey for your whole family, but especially you as the primary caregiver.
I think we all fear it, Julie, the idea that those "senior moments" we all experience become something much worse. I can see you understand from your own family's experience with dementia. Thanks so much as always for your support and understanding, my friend.
This is so heartbreaking to read, Amy. This is a phase of life we all must live through. But losing a person we love when they are still there with us is terrible. But you are strong - you will get through it - and do your very best for your dear mom. Lots of love to you, kiddo.
Thank you, Hilarie, for your understanding and your encouragement. Sending love straight back to you!
I’m so moved by this piece, Amy. And your mom sounds an awful lot like mine (uber progressive with no filter when it comes to politics ❤️). The love and compassion you have for your mom shines here. I am my mom’s only daughter and as I watch her age (she’s 76); witnessing her cognitive functioning and mobility teeter, my heart aches. The service you are providing by creating a community for folks who are caring for aging parents to come together and share resources, encouragement and understanding is beautiful. It’s one of the many ways I’m sure you make your mom so proud, still. 💕
Allison, thank you so much for this lovely comment. Yes, our mothers would have had a lot to talk about when it comes to politics. It is a heartbreaking process, to see our mothers/parents age. Thank you for seeing so beautifully the intention behind how I share this tender and vulnerable stage of my mother's life, and our relationship. She would be proud. Thank you for reminding me of that.